Wow. Yesterday we spent nearly seven hours with Dr. Janette Hope (apt name I'd say!). An added bonus is that she's located in the beautiful Santa Barbara, California where the weather and town is perfect for walking nearly everywhere. The first several hours were spent with both James and I taking turns walking through our medical history, exposure details, symptoms, and so on. Then we took a needed break and grabbed some lunch. Afterwards we had physical exams, nasal swabs (to check for types of mold and what may be intranasal growth), question asking (and there were many!), a time going over the treatment plan and lastly, a nebulized glutathione treatment each.
- Glutathione supplementation (it's an antioxident, supports health T regulatory cell function, balances immune system and we're both genetically inclined not to make enough)
- Activated charcoal to begin the process of removing toxins from our systems
- Regular saline rinses and nasal itraconazole (anti-fungal)
- Charcoal body wash and ketoconazole for James because of his skin condition
- Regular sauna, exercise and Epsom salt baths.
- Continuance of our current dietary restrictions, quality foods, increased consumption of anti-fungal foods.
- Vitamin/Supplementation recommendations:
- Specific therapeutic dosages of Vitamin C, fish oil, magnesium, Vit D3, Coenzyme B Complex, CoQ10, Zinc, Acetyl L Carnitine, Phopsphatidyl serine, Mitocore multivitamin, Hydrolyzed Whey Protein, Probiotics, Methyl B12, Acai powder.
- Environmental controls to reduce our overall burden (or water level in our theoretical buckets). As much as it's in our capacity, we are to:
- avoid exposure to water damaged environments, pesticides, solvents/VOCs/fragrances, smoke, heavily trafficked areas, plastics, vinyl chloride, heavy metals, dry cleaning, etc.
- clean with non-toxic cleaning solutions.
- consume organic as much as possible.
- limit EMF exposure.
- use glass or ceramic-lined cookware.
- use air filters.
- ideally create a "bedroom sanctuary" that is uncarpeted and minimizes dust-catching items. In our next home, it should be uncarpeted if possible.
- filter drinking and bathing water.
- spend as much time outdoors as possible.
- spend some time in the sun daily without sunblock (not long enough to burn, just to get adequate vitamin D).
There are a TON of testing options (literally up to 30 tests we could take) and we've already done a handful of them through our local functional medicine doctor. For now, we're sticking with bare minimum tests as we've already spent a fortune on testing and most of the results would not change the plan of action. In the doctor's words, they would be very interesting and the results could be helpful but ultimately most of them wouldn't change the actions we'd take. However, if we get further down the road of treatment and we're not progressing as we'd like, we can order the tests at that time and tweak our treatment as necessary. We've both already failed the VCS testing which tests neurologic function of vision and 92% of the time confirms biotoxin illness. For now, we've chosen to have additional nasal swab testing and spirometry (lung testing) completed. The rest of the tests we're going to put on hold as we see how we respond to treatment and move forward from there.
Child of God, wife to an amazing man, and mommy of many wonderful kiddos. :)